Here is some more info from the press release...
Leon Botha is one of the longest living persons with Progeria, Greek for rapid aging. Born in Cape Town, he is 24 years old, an artist and musician.
This body of work is a collaborative and artistic adventure for two artists, two strangers, two very different people, who, in the meeting of spirit, beyond the parody of flesh, discover a commonality.Through them we learn not to lament Leon’s life and journey, but to celebrate them.
The two artists empathetically dare, and dare us to transgress and disrupt the order and comfort of life and explore the idea of what it means to be human.
And examine the most important question - the condition of mankind?
What is normal…and what is not? What does dark mean? How near am I to it and from it?
All these images are shot on medium format and 4x5 film